Russia Creates Digital Registry for Patients With Blood Disorders

In Russia’s Arkhangelsk region, doctors have developed an electronic registry of patients with blood system abnormalities, now containing data on more than 5,000 people. The database combines genetic, clinical, and analytical information, allowing physicians to identify risk factors and personalize treatment strategies.

According to Professor Nadezhda Vorobyova, head of the Regional Center for Antithrombotic Therapy at Volosevich City Clinical Hospital No. 1, the system includes information about gene mutations that increase susceptibility to blood clots. This enables doctors to predict and prevent conditions such as thrombosis, stroke, and other vascular complications.

From Genetic Research to AI Integration

The registry is the result of two decades of research that began in the early 2000s, evolving into an interdisciplinary field combining molecular genetics and clinical practice. The center already applies personalized treatment for patients with rare genetic mutations: detecting abnormalities in the fibrinolysis system and using discrete plasmapheresis has helped reduce mortality rates among patients with acute DIC syndrome.

Artificial intelligence plays a key role in the project. Neural networks analyze genomic data, while online calculators assist physicians in determining individual thrombosis risks based on patient-specific parameters. Vorobyova emphasizes that AI is “a tool, not a replacement for the doctor.”

By merging traditional medicine with digital innovation, the project improves both diagnosis and prevention of vascular diseases—demonstrating how data-driven healthcare can enhance outcomes even in regional medical systems.